Meet Zach - the reason behind MyButtonBuddies
Here is Zachary. He is the reason that MyButtonBuddies came to be. This is where our story begins.
Photo by: Kori Gedris Photography
It was not until Zachary was 3 years, 7 months and, 9 days old that we got the devastating diagnosis of Mitochondrial Disease. Please visit http://www.umdf.org to learn more.
Our first pediatrician kept taking the "let's wait and see" approach. This was not working and Zach was wasting away before us. I decided it was time for a new pediatrician. I took Zach the next day into an new doctor's office near our home. The doctor took one look at Zach and asked how big was he. I told her at that point he was shy of 19 lbs and over 18 months old he was only 30 inches long. At this point he was also vomiting every time he slept and instead of staying steady with his weight it was all coming off. She immediately took action getting Zachary into all the right doctors to help with his case. All of which told me had we waited our son very well could have died.
It was a short 4 months later where the decision to place his g-tube was made. After that decision it was less then a week before the surgery (he was 25 months and 1 week old). By this time Zachary was down to 17 lbs. Surgery was set for October 23 2008 Ė a day we will never forget as he almost didnít come through the surgery because he could not hold his oxygen levels. He was on oxygen for the next 48 hours until he was well enough to keep up his own oxygen.
It has been over a year since his tube was placed. My little man has grown a full 10 pounds and over 6 inches in height. He still has other issues but he has become stronger. He no longer sleeps but for the night and his naps. He has sounds, better yet, words. He still has a way to go BUT he has come a VERY long way from where he was! He will have a life long struggle with his diagnosis but with the help of his G tube we are hopeful that he will stay strong.
Zach's tube truly was his life saver and continues to be. We've been told he will more then likely have a g-tube for the rest of his life. It could be worse, all I know is his tube has helped him and I'm not so scared anymore.
Zach is the reason behind MyButtonBuddies. After his surgery I was having such a rough time dealing with everything. I took the idea of colorful cloth pads to my mother-in-law (aka Toni Szilagyi) who went right to work making Zach his first set of pads: trains, dogs, and woo-woos (fire trucks). They were so much better then gauze - I found myself only needing to change once a day verses three times a day and being able to smile because it made his tummy look so much better and much less scary. The pads were so much better because I could reuse them instead of throwing the gauze away. We have never had any issues with GT (granulation tissue) since using the pads. All the comments when people see his stoma now also make both Zach and I feel better about having to be tube fed. Now that he is older they are great too because he getís to pick what he wants to wear.
That is it Ė the reason behind MyButtonBuddies.
In learning to deal with all of our issues, I decided way back when to start a blog, it has really helped me to relieve my stress. Please feel free to follow on our journeyhttp://www.caringbridge.org/visit/zacharyszilagyi
Chief maker of MyButtonBuddies, Webmaster and, the most wonderful Gamma in the whole world! Without Gamma Toni there would be no pads - literaly, because I can't make them yet. She has helped to make my dream of having MyButtonBuddies available for other families around the country, even the world.
Chief Marketeer. My primary roll is making everyone happy and getting the word out about our pads. I'm also the Mommy to the inspiration behind MyButtonBuddies - Zach. I'm also Mommy to another wonderful child too - Zoe.
Zachary is the most vivacious little boy you'll ever met! He is three and a half years old and has been through more than any person should have to go through in a lifetime. No matter what is happening he is able to smile and laugh and make it seem like nothing to him. I have no idea how he does it, but he does. I wish we all will learn through his struggles and triumphs how to be better human beings.
Zoe is big sister to Zach and daughter to Sophie and Doug, Also, another of Gamma Toni and Pada's cuties. She may be just a kid, but this kid has her own opinions on things. She is often giving pointers about what we should do and which patterns we should use. Zoe is also an AMAZING sister and always lets Zach know how much he is loved by her.
We have to give Pada big props... even if it hurt his hands, he is always there in an emergency to cut out circles of cloth to make those pads. So next time you look at your MyButtonBuddies pads, you never know, it just might have been cut with love by Pada.
We just have to put him on this list or we may never hear the end of it. Doug is the creative one; he is the one who came up with our name, MyButtonBuddies. If it was not for him, who knows what we would have called ourselves. He is our biggest supporter.